Employing a citizen science methodology, this paper elucidates the evaluation protocol for the Join Us Move, Play (JUMP) program, a comprehensive whole-systems approach to promoting physical activity among children and families aged 5 to 14 in Bradford, UK.
Children's and families' experiences with physical activity and their participation in the JUMP program will be explored in this evaluation. This collaborative and contributory citizen science study involves focus groups, parent-child dyad interviews, and participatory research initiatives. Feedback and data will direct the modifications made to this study's procedures and the JUMP program. Moreover, we are committed to exploring the experiences of participants in citizen science, and the suitability of citizen science methods for evaluating a whole-system approach. Data analysis in the collaborative citizen science study, involving citizen scientists, will integrate a framework approach alongside iterative analysis.
Study one, comprising E891 focus groups (part of the control trial) and E982 parent-child dyad interviews, and study two (E992), have received ethical approval from the University of Bradford. Participant summaries, delivered via schools or directly, will complement the peer-reviewed journal publications detailing the results. Input from citizen scientists will be instrumental in developing further dissemination strategies.
The University of Bradford has granted ethical approval for study one (E891 focus groups, part of the control trial, and E982 parent-child dyad interviews) and study two (E992). Peer-reviewed journal publications will detail the outcomes, while summaries will be distributed to participants via schools or direct delivery. Further dissemination opportunities will be facilitated by the insights provided by citizen scientists.
In order to combine empirical data on the part played by families in end-of-life communication, and to determine the communicative methods crucial for end-of-life decision-making within family-oriented cultures.
Settings for communication at the end of line.
This integrative review meticulously followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses reporting protocol. To identify relevant research on end-of-life communication involving families, four databases (PsycINFO, Embase, MEDLINE, and Ovid nursing) were searched for publications between January 1, 1991, and December 31, 2021. Keywords including 'end-of-life', 'communication', and 'family' were used in the search. For analysis, the extracted data were categorized and coded into emerging themes. The search strategy identified 53 eligible studies, and a quality assessment procedure was then applied to each of these included studies. Quantitative studies were examined using the Quality Assessment Tool, and the Joanna Briggs Institute Critical Appraisal Checklist was utilized to assess the quality of qualitative research.
Researching end-of-life communication practices, emphasizing the perspective of families.
Four overarching themes from these studies are: (1) family conflicts surrounding end-of-life communication, (2) the importance of timing end-of-life discussions, (3) the difficulty in designating a single individual to handle end-of-life decisions, and (4) differing cultural perspectives surrounding communication at the end of life.
The current assessment highlighted the pivotal role of family in end-of-life communication, demonstrating that family engagement is likely to enhance the patient's quality of life and experience during their passing. Subsequent research should develop a family-oriented communication framework, specific to Chinese and Eastern cultural contexts, designed to address family expectations during prognosis disclosure, enabling patients to maintain familial responsibilities, and facilitating patient-centered end-of-life decision-making. Family involvement in end-of-life care should be carefully considered by clinicians, who must tailor their management of family member expectations to reflect the nuances of diverse cultural backgrounds.
The current literature review pointed to the necessity of family in end-of-life communication, showing that family engagement likely results in enhanced quality of life and a more peaceful dying process for patients. Research should investigate the development of a family-oriented communication framework, culturally relevant to Chinese and Eastern contexts. This framework should be designed to handle family expectations during the delivery of a prognosis, aiding patients in fulfilling their familial roles during the complex process of end-of-life decision-making. read more For effective end-of-life care, clinicians must understand and address the significance of the family's role, customizing their approach to accommodate diverse cultural expectations.
To ascertain patients' accounts of their enhanced recovery after surgery (ERAS) journey and to pinpoint the obstacles encountered during ERAS implementation, observed from the patient's perspective.
The qualitative analysis, along with the systematic review, adhered to the Joanna Briggs Institute's synthesis methodology.
Key researchers and their publication lists were consulted to enhance the scope of the systematic search for relevant studies that appeared in four databases: Web of Science, PubMed, Ovid Embase, and the Cochrane Library.
The ERAS program enrolled 1069 surgical patients in 31 studies. The Population, Interest, Context, and Study Design guidelines of the Joanna Briggs Institute were instrumental in constructing the inclusion and exclusion criteria, thereby defining the scope of the article retrieval process. The criteria for selecting studies involved the consideration of ERAS patients' experiences, using qualitative data in English, and publication dates spanning from January 1990 to August 2021.
By using the Joanna Briggs Institute Qualitative Assessment and Review Instrument's standardized data extraction tool, data were retrieved from the applicable qualitative studies.
Healthcare timeliness, family care expertise, and patient apprehension regarding ERAS safety are key structural themes. The process dimension revealed several crucial themes: (1) patients' need for thorough and correct information provided by healthcare professionals; (2) patients' requirement for effective communication with healthcare professionals; (3) patients' aspiration for personalized treatment strategies; and (4) the necessity for ongoing follow-up care and support. Medial meniscus Effective relief of severe postoperative symptoms was a common thread in patients' desired outcomes.
A patient-focused evaluation of ERAS exposes shortcomings in the healthcare delivery process during clinical care and enables timely solutions for problems related to patient recovery, thus lessening resistance to ERAS implementation.
The item CRD42021278631 should be returned immediately.
CRD42021278631: The reference CRD42021278631 is being returned.
Individuals with severe mental illness are susceptible to the onset of premature frailty. An intervention to diminish the risk of frailty and the related negative repercussions is crucially needed in this cohort. A novel investigation into the feasibility, acceptability, and initial effectiveness of Comprehensive Geriatric Assessment (CGA) is conducted to improve health outcomes in individuals experiencing both frailty and severe mental illness.
Twenty-five participants, displaying frailty and severe mental illness and between the ages of 18 and 64, will receive the CGA, sourced from Metro South Addiction and Mental Health Service outpatient clinics. The primary outcomes will investigate how well the integrated CGA fits into and is well-received by routine healthcare. Amongst the pertinent variables are frailty status, quality of life, polypharmacy, and a range of mental and physical health elements.
All human subject/patient procedures received ethical clearance from the Metro South Human Research Ethics Committee (HREC/2022/QMS/82272). Conference presentations and peer-reviewed publications are the methods for disseminating the outcomes of the study.
Metro South Human Research Ethics Committee (HREC/2022/QMS/82272) approved all procedures involving human subjects/patients. Peer-reviewed publications and conference presentations will be used to disseminate the findings of the study.
Aimed at improving objective decision-making, this research developed and validated nomograms to predict survival rates for breast invasive micropapillary carcinoma (IMPC) patients.
Based on Cox proportional hazards regression analyses, prognostic factors were determined and used in the construction of nomograms to predict 3- and 5-year overall survival and breast cancer-specific survival. C difficile infection Employing Kaplan-Meier analysis, calibration curves, area under the curve (AUC) values, and the concordance index (C-index), the nomograms' performance was evaluated. To compare nomograms against the American Joint Committee on Cancer (AJCC) staging system, decision curve analysis (DCA), integrated discrimination improvement (IDI), and net reclassification improvement (NRI) were employed.
From the Surveillance, Epidemiology, and End Results (SEER) database, patient data were obtained. The database stores cancer incidence data collected by 18 population-based cancer registries located throughout the United States.
After rigorous exclusion of 1893 patients, the current study now incorporates 1340 individuals.
Regarding C-index values, the OS nomogram (0.766) exhibited a higher value compared to the AJCC8 stage (0.670). The OS nomograms also demonstrated greater AUC values in both 3-year (0.839 versus 0.735) and 5-year (0.787 versus 0.658) periods. The nomograms' clinical utility, as assessed by DCA, proved superior to that of the conventional prognostic tool, showing strong agreement between predicted and actual outcomes on calibration plots.